What if it’s not endo and I’m wasting everyone’s time?
By - modragonsmoproblems
You're not wasting their time. They get paid either way. You'd be ruling something out which is important information to have. Some people have severe endo but don't get any symptoms. Remember that this is a support forum, so the perspectives you see the most are people who need to reach out for support more often, i.e., people whose symptoms are more severe.
I had no symptoms at all but a huge cyst and diagnosed with stage 2 today. You’re not overthinking or being a drama Queen! It’s your body and if it’s telling you something, listen to it.
Option 1: You don't have endo and have to say, "Oops, my bad. Sorry for wasting your time."
Option 2: You do have endo and get on the road to recovery and hopefully ending years of pain and symptoms.
Your pain is valid, your worry and concern is valid. You do not have to live a life of pain.
Mine used to be like that, the pain was on and off months and months at a time. It gradually got worse and started being more constant because unfortunately it never got treated. Even if it turns out not to be endometriosis, it’s worth ruling it because it’s better to know before it gets worse.
It sounds like it is though. And also I was under the impression that some endometriosis can’t be found on an ultrasound?
I've had these thoughts too. As my surgery date approaches, I'm more confident that it is necessary, if not from a "this is definitely endo and needs to be removed" standpoint, but a "this level of pain is definitely not acceptable with the life I want to be living, and this surgery will help diagnose a problem/rule out conditions so that I can move forward". I'm trying to think of it as a more invasive diagnostic imaging, since nothing has shown up on ultrasound, MRI, CT, or exam. You know your body better than any provider. If you think the benefits of the procedure outweigh the risks, then I would push for it. Watching and waiting has only made things worse for me.